Northern Nevada Disability Access was launched in July 2010.
In September 2019, we renamed Northern Nevada Disability Resource Network.
My story is expressed through the eyes of my son who is an intellectually challenged young adult diagnosed with a rare chromosomal disorder while in his teens.
We were feeling overwhelmed with the lack of information available to parents and others on the internet, or in the local community took the time to research and gain information, and then created the first, unique, and useful website.
Amy accumulated hundreds of non-paid hours inputting data, interviewing providers, gathering information, and developing a spectrum of services from Alzheimer’s to Yoga or the Special Child to serve the needs of an expanding diverse community in Northern Nevada.
Northern Nevada Disability Resource Network has grown from 5 to over 1,000 families in the past 10 years. The community is informed of the site and services by direct contact of business cards, word-of-mouth, social networking, outreach events, interviews in the newspapers and on TV and has been successful in promoting resources.
NNVDRN believes every family member with a disability /health condition should have access to information, services, and quality health care. We attempt to consistently offer the community the needed information to “bridge the gap” by networking with organizations to connect these individuals to appropriate service providers.
Susan P’s son needed transition services once he graduated high school. She met with the school’s guidance counselor for recommendations. Susan was concerned that her son would not be able to transition into an independent program once he graduated high school. Susan and her family were forced to move to Las Vegas because of the lack of services to accommodate her son.
Barbara H. a young mother of a child with a rare kidney disease moved to Reno without knowing any specialty services. She was referred to a provider who refused the family’s insurance. Northern Nevada Disability Access informed the mother of a service provider who was willing to care for her son under a minimal sliding scale fee to continue providing specialized care for her son to receive dialysis.